Resources

Lewy Body Dementia Research Centers of Excellence

There are 22 Lewy Body Dementia Research Centers of Excellence in the country, 3 are located in Florida

University of Florida, Gainesville

Norman Fixel Institute for Neurological Diseases

3009 Williston Road
Gainesville, FL 32608

Phone: (352) 294-5400


University of Miami in Boca Raton

University of Miami, Miller School of Medicine, Comprehensive Center for Brain Health

7700 W Camino Real, Suite 200
Boca Raton, FL 33433

Phone: (561) 869-6808


Mayo Clinic in Jacksonville

The trained staff in the Memory Disorder Clinic at Mayo Clinic in Florida provides comprehensive care to people with Alzheimer’s disease, frontotemporal dementia, Lewy body dementia, mild cognitive impairment and other memory disorders.


LBDA National Association

Place yourselves on the Lewy Digest e-newsletter

Order a free caregiver packet and a health professional packet. These can be ordered online or by calling 404.935.6444

Lewy Line: 1-800-539-9767


Lewy Body Dementia Resource Center

HELPLINE – 516-218-2026 or 833-LBD-LINE


Florida Alzheimers Center of Excellence (also serves people with Lewy Body)

To connect to a Care Navigator within FACE, call Elder Helpline at 1-800-96-ELDER


NIH National Institute of Aging

Phone: 1 800 222 2225


Opportunities for Clinical Trials

NIH US National Library of Medicine

ClinicalTrials.gov

ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world.

University of Florida LBD Life Lab

The goal of our research group is to improve the lives of those affected by Lewy body dementia through purposeful conversation and innovation.