Below are treasured sharings from our Lewy Body community.
“Two years ago, my husband was diagnosed with Lewy Body Dementia. With that diagnosis came questions with very few answers. Through the internet, I found CFLB. It was a Godsend. My Loved One and I have received so much from this group. We are part of a support group that has now become family. Guest professionals, who share various information on LBD, have been invaluable to us. Sue Bouder is our guiding Angel. I don’t know what we would do without CFLB”. – carepartner of LBD husband, Jody C., The Villages, FL.
“My husband’s Lewy Body Dementia (LBD) diagnosis came in late 2019. Initially, we had very little idea what this meant. When my daughter found the Central Florida Lewy Body website, I connected with Sue Bouder, the Executive Director, and my husband and I became regular participants on the weekly Zoom Support & Education meetings. My sweet husband “loved” his ‘People with Lewy’ support group. We both received so much knowledge, companionship, and tools to cope with our journey. My husband has since passed, but my heart is still full of gratitude to this important Central Florida Lewy Body organization.” – former carepartner of LBD husband, also a former Board Member, Jennie A., Bonita Springs, FL
“My wife and I moved to Central Florida from Chicago in 2021. We chose this area due to its proximity to the Lewy Body Research Center of Excellence at the University of Florida in Gainesville. What has been a wonderful bonus is finding and participating in the Central Florida Lewy Body groups. In particular, the Education Group has given us practical information from both experts in the field as well as those in different stages of the disease. Importantly, sharing with the group has us feeling that we are not alone in our mutually difficult journey.” – carepartner of LBD wife, also a former Board Member, Jeff F., The Villages, FL
“It was of utmost importance to me to be able to find a group not just for me, but for my husband, who, newly diagnosed, wanted to talk to others like him, about what is going on in their lives. Most groups I have found are for caregivers. I was delighted to find this group; there are few others like this around the country.” – carepartner of LBD husband, Davida M., MA
