Read what our Lewy Body community members are saying!
Below are the treasured sharings from our Lewy Body community
“My wife and I moved to Central Florida from Chicago in 2021. We chose this area due to it’s proximity to the Lewy Body Research Center of Excellence at the University of Florida in Gainesville. What has been a wonderful bonus is finding and participating the Central Florida Lewy Body groups. In particular the Education Group has given us practical information from both experts in the field as well as those in different stages of the disease. Importantly, sharing with the group, has us feeling that we are not alone in our mutually difficult journey.”
Jeff F., The Villages, FL.
“I have been attending the Lewy Body Support Group on Zoom and it has
lightened the burden of my husband’s illness. We have a sensational moderator
and the caregivers have given so many suggestions that have helped me to be a
better person and wife to my husband. Thanks so much.”
Barbara A., Deltona, FL
“With a disease like LBD that has so many variations and challenges, the one
constant for me, the caregiver, is a group of caregivers willing to open up and share
through a support group. “
Jennie A., Bonita Springs, FL
“It was of utmost importance to me to be able to find a group not just for me, but for my husband, who, newly diagnosed, wanted to talk to others like him, about what is going on in their lives. Most groups I have found are for caregivers. I was delighted to find this group; there are few others like this around the country.”
Davida M., Vero Beach, FL